Debra is a national charity supporting individuals and families affected by Epidermolysis Bullosa (EB), providing essential help and support throughout their lives. Epidermolysis Bullosa (EB) is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch. Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wing of a butterfly. Painful open wounds and sores form where this exceptionally fragile skin is damaged – in some cases, internal linings and organs are also affected. Complications as a result of secondary infection and extensive scarring are factors that people living with EB often have to face. You can find out more about Debra here.
Over the past few years we have worked with many EB customers and it has been a privilege to get to know them and their families. We recognise that, for some, there may be challenging times ahead and for many who are born with EB we know that they will need to rely on our support for a lifetime. With this comes the opportunity to build strong, meaningful relationships which is why we do not provide an 'ordinary' service. Working long term with individuals and their families means that we build a relationship based on trust and knowing that our support is a constant in their lives is something we value.
Each customer has their own personal care advisor who takes the time to understand their needs and can be called upon, like family, to help in an emergency. This approach brings us closer to our customers and we have been inspired by many of the Debra members and the stories that they share with us. Some of our EB customers have been with us since birth and we have watched them flourish and grow. Our expertise in this area also continues to grow and we strive to develop our service based on the needs of each individual and their family.
Benefits of using Bullen Healthcare for debra members
- Dedicated personal advisor, champion, supporter, friend
- Monthly stock and well-being “check-ins”
- Largest selection of complimentary items – from hand sanitisers to mattress protectors, wet wipes to cooler bags
- We deliver all your appliances and medication prescriptions in one go for your convenience, every month
- Rapid Response Team for life’s emergencies, 365 days per year
- Free delivery, re-ordering and collection
- A network of specialist support